Would you like to:
- Become an advisor on research steering committees
- Give independent feedback on clinical trial protocols
- Participate in the development of new medical devices
- Take part in research questionnaires and surveys
Patient feedback is an important part of modern clinical research. As the UK’s only charity dedicated to back pain, BackCare is uniquely placed – connecting patients, doctors, researchers and industry to help turn the tide on back pain.
If you suffer from back pain and would like to get involved with research, please see the various opportunities below:
SPIRIT-iNeurostim and CONSORT-iNeurostim are developing reporting guidelines for clinical trial protocols and reports of implantable neurostimulation devices: the SPIRIT-iNeurostim and CONSORT-iNeurostim extensions.
By taking part in our survey, you will help us to develop guidelines for reporting clinical trials of implantable neurostimulation devices.
The survey will ask for your views on the most important items that should be reported by clinical trials of implantable neurostimulation devices.
We are particularly interested in the views of people who:
- have a condition that can be treated using an implantable neurostimulation device;
- have experience of using an implantable neurostimulation device;
- care for somebody who has a condition that can be treated using an implantable neurostimulation device or who is actively using an implantable neurostimulation device;
- have expertise in implantable neurostimulation devices;
- have expertise and are interested in trials reporting and methodology (e.g., journal editors, statisticians, methodologists);
- are interested in the reporting of clinical trials of implantable neurostimulation devices (e.g., journal editors, representatives from pain and neurostimulation societies, companies who develop implantable neurostimulation devices).
You decide whether to take part. The survey does not ask for personal information. All data will be stored securely and deleted once the project reports have been published.
The Participant Information Sheet gives further information about the study and what would be involved if you choose to participate.
If you have any questions that you would like to ask, please contact:
Rui Duarte – Email firstname.lastname@example.org – Telephone +44 (0)151 794 5726
Rebecca Bresnahan – Email email@example.com – Telephone +44(0) 151 529 5949
Time to complete the survey will vary depending on how much you want to say. We anticipate it will take between 15 to 30 minutes. The survey will close on Tuesday 30th November 2021.
Please access the survey via the link below: https://delphimanager.liv.ac.uk/ineurostim/Delphi
University of Manchester are building a ‘pain forecast’ and are interested in hearing your thoughts in a questionnaire.
Do you wish you could predict your pain severity in the near future? Researchers at the University of Manchester are building a ‘pain forecast’ and want to make sure that it is useful for people living with chronic pain.
If you have a chronic pain condition, live in the UK, and are over 18, you are invited to provide your views in this pain forecast.
More information and the questionnaire can be found at: tinyurl.com/PainForecast
If you have any questions about this study, please contact Claire Little at firstname.lastname@example.org
Warwick University are undertaking a Study of Mental Defeat in Chronic Pain (WITHIN Project), at the University of Warwick.
The next phase (our lab-based study) has now opened for recruitment.
We are currently looking for volunteers (UK-only) aged 18-65 with chronic pain conditions that would be willing to travel to the University of Warwick Campus (Based in Coventry) to take part.
For a snapshot view of what participating entails, please see a short description of the study below:
This lab-based study to understand the roles that mental defeat and mental victory have in underpinning different experiences of chronic pain. If you agree to take part, you will be invited to attend a test session at the University of Warwick Sleep and Pain Laboratory located at the main Central Campus (Coventry) with one of the researchers. The test session typically takes no longer than 2.5 hours. As a thank you for your time, at the end of the lab-based study you will receive a £20 Amazon voucher as a reimbursement of your time and travel expenses! More details can be found in the Participant Information Leaflet.
If you would like to take part in our lab-based study, please complete the short screening questionnaire so that we can make sure that you are eligible. Click the link here: http://warwick.co1.qualtrics.com/jfe/form/SV_1HUUzP8DMwzoEzc
The Musculoskeletal Disorders Research Advisory Group Versus Arthritis* is carrying out an online research prioritisation exercise.
In this second part of the exercise, we’re seeking opinions on the top priorities for musculoskeletal disorders research.
We want to hear from you if you are, or care for, a person living with a musculoskeletal condition, a researcher, a healthcare professional, an industry representative, a research funder, a healthcare provider or government policy maker.
Part 1 of our research prioritisation exercise was completed between November 2020 – January 2021. From peoples’ responses to our first survey, we produced a list of research areas into musculoskeletal conditions. By deciding what are the most important areas for you will help us to identify, shape and champion the areas of research to better understand and manage musculoskeletal conditions. This is a critical part of planned work by the Musculoskeletal Disorders Research Advisory Group Versus Arthritis throughout 2020 and 2021.
The survey is now live and will remain open until 10 pm on 3rd October 2021 and should take no more than 40 minutes to complete. Take part HERE.
*The Musculoskeletal Disorders Group includes the following disorders: osteoarthritis, crystal diseases such as gout, primary and secondary causes of musculoskeletal pain including regional and widespread pain (such as back pain, shoulder pain and tendinopathy, other regional pain syndromes and fibromyalgia), hypermobility, metabolic bone disorders (such as osteoporosis and rare diseases) and musculoskeletal injuries caused by acute traumatic events.
NHS are looking for patients that have received physiotherapy for sciatica in the NHS.
Aged 70 or older – We would like to hear about your experiences to help us to design a research study.
The meeting is via Zoom – Sep or Oct 2021.
Please contact: Lucy Dove
(Physiotherapist and Researcher, Royal National Orthopaedic Hospital) email@example.com
University of the West of Scotland are looking for individuals with chronic pain aged 18+ to take part in a 45-60 minute interview over Zoom
Anyone who lives in Scotland, that has chronic pain and that has made a treatment/healthcare decision can take part. The purpose of the study is to examine individuals with chronic pain and members of the general population’s views on and experiences of medical shared decision-making (the conversation that happens between a patient and their healthcare professional to reach a health care choice together).
For more information or to take part please contact Abbie.McGuire@uws.ac.uk
Pain Research group at University Liverpool are currently recruiting participants with chronic pain, as well as participants without pain, for an online study on memory and attention.
We are investigating which aspects of memory and attention work differently in people with and without chronic pain, whether these abilities are related to specific features of chronic pain, and how stable they are over time.
The study takes place online via Gorilla platform and involves questionnaires and experimental tasks completed on your computer (not compatible with smartphones or tablets) in one or two sessions, each taking up to 50 minutes. You will answer some questions about yourself, your current mood, sleep, level of fatigue, and pain. In different tasks, you will see letters and images presented on the screen, and sounds played through your headphones. You will need to detect specific letters or tell apart different images or sounds presented one after another with short time delays. After the first session, you will be invited to complete a second similar session 1 week later, although it is not obligatory to complete both.
This study is open to those who experience chronic pain (persistent or recurring pain for the past 3 months or more) and those who do not experience chronic pain. Male and female participants between 18-65 years old, who have normal or corrected to normal vision and hearing (e.g. with glasses, contact lenses or hearing aids), are welcome to participate. You should not take part if you have a history of neurological disorders (e.g. stroke, traumatic brain injury, neurodegenerative disease, epilepsy).
As a compensation for your time, you will receive a £7 Amazon voucher for completing the first session, or a £14 Amazon voucher for completing both sessions.
If you would like to take part, please email firstname.lastname@example.org to receive a personalised link to the study. Please quote ‘memory study’ in your email. Note there may be a delay of up to 3 working days for us to process your request and send you a link.
If you have any questions about the study please contact the researchers at email@example.com.
Newcastle University are seeking participants living in chronic pain for their online research.
For more information or to participate in the research follow this link:
An opportunity for patients to share their experiences and help design a research study.
If this is you, then please get in touch. @xlgriffin @SallieLamb18
Heriot-Watt University, Edinburgh are seeking participants for their research into the employment experiences of living in chronic pain in Scotland.
They are seeking chronic pain sufferers and employers.
For more information or to take participate in the reaserch go to:
Patient Ambassador Group (PAG) Bone Pain II
Do you live with bone Pain?
PAG wants to hear from you! Contact us if you live in Europe and are interested in co-creating solutions to bridge the gap between scientists and patients.
Email: firstname.lastname@example.org / Twitter: @pagbonepain / PDF Flyer